Welcome to the Dylan Kelsall Trust Website - www.DylansTrust.org.uk

DylansTrust Logo designed by Lauren

Dylan at Xmas 2005Dylan the dog

 Welcome to Dylans Trust 

Climbing High for Dylan

Simon Edwards and Graham Davis - Ben Macqui

Simon and Graham are embarking in a 3 day 2 night Expedition to Scotlands Cairngorm National Park mountain range, will consist of 57km hike. Simon says "We will be climbing the UK second highest mountain Ben Macdui unlike Ben Nevis Ben Macdui is situated in the centre of a vast wilderness This route is a remote hike that leads up to an exposed arctic like plateau which experiences savage weather conditions we hope to climb a further 4 mountain peaks Cairn Lochan, Stob Corie an t- Sneachda, Cairn Gorm, and The Saddle. They are planning to cover an average of 18km per day and we will be ascending altitude of 1309m at the highest point. This is one of the most remote parts of the UK we will be sleeping on the mountain range for 2 nights and have to be self sufficient for the entirety of our expedition carrying all our own equipment."

 

Massive Thanks to Both Simon and Graham

Good Luck with the Expedition 

 

You can make a donation at

www.DylansTrust.Org

 

Dylan was first diagnosed with the disease Ullrich Congenital Muscular Dystrophy when he was 3 years old.

               

 To make matters worse he was also diagnosed with scoliosis of the spine. Curvature of 40o Nov 2005,    63o Feb 2007,&  76o Aug 2007.

 

To contain this Dylan was fitted with a  plaster cast in Oct. 2007. Below are a couple, of the many he has had fitted over the years!

   

 

November 2010, Dylan had the growth rods fitted at Great Ormond Street Hospital. This is the first of many operations Dylan has to endure. It’s not easy at his age!

     Before    After  

First Op

 

The growth rods in Dylan’s back have helped immensely but  the downside to this is he has to have them adjusted every six months until he is old enough to have them fused. He also still needs to wear a cast on his torso.

                  

 

Dylan has difficulty walking as his condition causes contractures in his tendons, which in turn means he can only walk on the balls of his feet. This means Dylan is in pain when he walks. To try and help stretch his Achilles tendons he now has to have  plaster casts on both legs from the knee down for at least 8 weeks (serial casting), another challenge for Dylan!

 

Life is difficult for Dylan and his family but they all remain positive, especially Dylan, he never gives up! He sometime gets ‘down’ but even then he is still determined to carry on.

See how Dylan's Extension is coming along

NEW EXTENSION PAGE

 

 

His efforts have been rewarded recently with  winning The Sentinel ‘Child of Courage Award’ and was fortunate enough to be selected by Great Ormond Street Hospital, to go to the F1 practice day at Silverstone, here he met Lewis Hamilton and Jenson Button, who signed Dylan’s “wheels”.

 

 

Dylan is a brave and inspirational boy who has suffered all his life and things will only get more and more challenging for him.

PLEASE  help us to try and improve his life by supporting the extension project Dylan so desperately needs.

We are looking for any help available, no matter how small.

 

We understand in the financial climate of today giving any donation is difficult but any contribution would be greatly appreciated, whether it be financial, voluntary working time, knowledge, expertise, materials or tools.

 

All of which we need to complete Dylan’s extension.

 

 

Local Openreach Engineers and Managers come together as a Community

Just a quick note to advise the Openreach Staffordshire & Shropshire Community Calendar is now on sale!! It has been a fantastic effort by all involved including the models, photographer, and those who rallied round on the day of the shoot making tea and bacon butties for all. Designed by Westhill,of London, and printed by Xerox.

The final result is great quality and epitomises what Openreach Communities is all about!!

Sincere thanks to all involved. If you want a copy they will be on sale at £5 each and 100% goes to Dylans Trust a fantastic and worthy cause. If you would like some copies to sell on behalf of the charity or buy one please let me know.

(Warren 07950 413121)

 

The Sentinel's Our Heroes awards 2012

 

   

Dylan won the 2012 Child of Courage Award

It was Amazing, He was Amazing, THE whole Night was AMAZING

Dylan loved his night at the Awards, he met many famous people and had his photo taken with the stunning actress - Rachel Shenton - Mitsy from Hollyoaks

 

 OUR Electronic  Fund Raising / Donation Site  ( it costs 10%) 

 

 

 

The Dylans Trust has been set up for our Wonderful Son, Dylan
 
  Dylan was diagnosed with a Congenital Muscular Dystrophy, in October 2005. The CMD that Dylan has is Ullrich Congenital Muscular Dystrophy. This is a disabling, progressive and life limiting disease for which there is no known cure, yet.

 

  With the help of this website and through fundraising efforts, we aim to increase awareness of Dylans condition, and raise money in an effort to provide him with the best quality of life that he can have. We are in the process of trying to raise £32,000, (+ Through floor Wheelchair lift) so that we can extend our house to incorporate a bedroom and "wetroom" for Dylan. There is a lot of essential specialist equipment that for both in and out of the home, that will help Dylan. Our intention then is to continue raising both funds and awareness that will benefit the research into his condition.

 

 We are arranging a few fundraising events, in the near future, but we still have a way to go.  So, if you would like to take part in any of our fundraising events, organise your own event, sponsor an event, or simply donate to Dylans cause, we would greatly appreciate your help and support


Thank you so much for taking the time to visit our site, we hope you return soon.
Dylan, Shel and Warren

 

 

 

 

 

Hi Everyone

 

 

As you may know, we have finally managed to get planning permission for Dylans Extension. So we now how the very challenging task of raising some £32,000.

We have managed to find a website that you can use as a search engine same as "google". But each time you use it to search DylansTrust will receive 0.33p , yeh a third of a pence. I know it's small but it all counts.

 

http://dylanstrust.easysearch.org.uk/

 

Also if you register and then use the link to buy things online from places like Amazon, Comet etc then some of the price will be given to DylansTrust. I think between 5-15%. so if you can it would be really appreciated. It's the link below :

 

http://www.easyfundraising.org.uk/causes/dylanstrust

 

 

 

We also have been able to set up a website that will accept donations for anyone doing sponsorship for Dylan or any one just wanting to donate. It costs Dylans Trust 10%. it's the link below.

 

Please help to"Raise the Roof" Goto

 

Www.gofundme.com/Dylanstrust

 

 

 

However if you want to donate , but only costing 5% then use the "donate" button below ....

 

 

 

 

Www.DylansTrust.org.uk/donate.htm

 

 

 

Thanks for your continued support.

 

Dylan , Shel and Warren

 

 

 

 

 

Thanks to Everyone who gave money at "Strength in Numbers" event Held in Tesco Superstore Longton. We managed to raise a massive £495 for Muscular Dystrophy Campaign.

Contact Us

 

BIG thanks to Brendan for raising over £600 by completing the "Potters Arf"

Football Fundraiser "Signal Man Vs Ashwood"

The Winners  Signal Man FC !!

Thanx for Popping in and having look, We are still having problems with the gallery and guest book. Please bear with us. You can email us by clicking this button Feedback

I will pass your messages onto Dylan

 

                        Copyright © Warren Kelsall 2006. All rights reserved.                                  Do ya wana ?

 

 

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