Dylan was diagnosed with a Congenital Muscular Dystrophy, in October 2005. The CMD that Dylan has is Ullrich Congenital Muscular Dystrophy. This is a disabling, progressive and life limiting disease for which there is no known cure, yet.
With the help of this website and through fundraising efforts, we aim to increase awareness of Dylans condition, and raise money in an effort to provide him with the best quality of life that he can have. We are in the process of trying to raise £20,000, so that we can extend our house to incorporate a bedroom and "wetroom" for Dylan. (We have just received notification of a change to the plans that now means we need to raise a staggering £38,000)There is a lot of essential specialist equipment that for both in and out of the home, that will help Dylan. Our intention then is to continue raising both funds and awareness that will benefit the research into his condition.
We are arranging a few fundraising events, in the near future, but we still have a way to go. So, if you would like to take part in any of our fundraising events, organise your own event, sponsor an event, or simply donate to Dylans cause, we would greatly appreciate your help and support
Thank you so much for taking the time to visit our site, we hope you return soon.
Dylan, Shel and Warren
Thank you very much, for all of your interest in the DylansTrust T shirts.
I can now confirm that we managed to secure a good price on them. A minimum donation of just £8.75, for Children (Sml) and £9.75 for Adults (M/L/XL). We have some Black polo shirts coming soon, just waiting for the supplier, they are about £4 more, for each one
If you would like it be the proud owner of 1 (or more), then just drop us an email, with the size & quantity. We will then email you back with minimum donation figure and expected delivery date.
Childrens Tee Shirt
Adults Tee Shirt